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Resources and References for HIV Testing in Health Care Settings In Delaware
Because knowing one’s HIV status is vital to HIV prevention and treatment, the Centers for Disease Control and Prevention (CDC) and the Delaware Division of Public Health recommend routine opt-out HIV screening for everyone over age 13 in health care settings. This website provides information to health care providers on the status of Delaware law regarding routine opt-out HIV testing, as well as tools for implementing routine opt-out HIV testing in health care settings. Testing is important for many reasons:
The Delaware HIV Consortium's Toolkit for Implementing Routine HIV Testing in Health Care Settings contains a wealth of information and resources for health care providers, including linkages to over 30 websites and PDF documents. The linkages may contain similar basic information, additional specific information, varying formats, and valuable resources for different purposes and situations. To help navigate the toolkit, print this 4-page "Roadmap" for a brief summary of each linkage, its contents, and page length.
Background TOP Every year, an estimated 56,300 Americans are infected with HIV/AIDS and approximately 18,000 people die due to complications of AIDS (HIV Testing, 2009). The Centers for Disease Control and Prevention (CDC) estimates that more than one million people are now living with HIV in the United States and one out of five (21%) of them do not know they are infected. 53% of all new infections are transmitted by the 21% that do not yet know they have HIV – and do not perceive themselves as having been at risk and do not seek testing. While there have been great strides in HIV treatment and public education since the early 1980s, helping patients realize their risks for HIV infection continues to be a challenge for health care professionals. Linking those with HIV to medical intervention as soon as possible in the disease process is vital to reduce morbidity and mortality, reduce transmission and improve quality of life. Studies show that people that are aware they have HIV also change their behavior to reduce the risk of HIV transmission to others (CDC, 2006). The CDC recommends routine opt-out HIV screening for all adults aged 13-64 in health care settings. Delaware Division of Public Health recommends routine testing of anyone over the age of 13 – in order to not neglect the sexual health needs of Delaware’s senior population. One of the President Obama’s top HIV/AIDS policy priorities has been the development and implementation of a National HIV/AIDS Strategy (NHAS), released July 13, 2010. The three primary goals of the NHAS are:
The Delaware HIV Consortium is committed to achieving the NHAS goals in Delaware by providing health care providers with the resources they need to effectively implement routine HIV testing in order to help:
It is our hope at the Consortium and the Division of Public Health that, through these resources, health care providers can effectively and efficiently offer routine HIV testing to their patients. Recommendations for Routine HIV Testing TOP This section provides access to links including the latest CDC Recommendations for HIV Testing of Adults, Adolescents, and Pregnant Women in Health Care Settings, additional recommendation information from the CDC, and information from the AIDS Education and Training Center (AETC).
Delaware Law TOP Information in this section can be found on current Delaware law in regards to HIV testing in health care settings. Additionally, information is provided on potential changes that may occur if the Delaware legislature adopts the full CDC’s recommendations for routine opt-out HIV testing. Current Laws Pertaining to HIV/AIDS Testing in the State of Delaware:
Current HIV testing laws in Delaware are codified under Delaware Code Title 16. Chapter 7. Sexually Transmitted Diseases and Chapter 12 Informed Consent and Confidentiality. Subchapter I. HIV Related Test. In 2009, Delaware adopted the full CDC recommendations for pregnant women only.
Additional changes to the code have been drafted in bill form in 2010 by the State of Delaware Division of Public Health for the adoption of routine opt-out testing in health care settings for all persons 13 through 64. Besides recommending full adoption of the CDC recommendations, the changes codify all of the requirements under a single chapter—Chapter 7. The draft bill will be introduced to the State legislature after it re-convenes in January 2012. The draft bill defines routine opt-out testing and outlines consent requirements to read “...that the general consent for medical care shall encompass testing for HIV and that testing may be performed as a part of routine care unless it is declined and that the declination is noted in the medical record. A separate consent for HIV testing is not required.” The draft language also modifies the definition of “Informed Consent” by eliminating the extensive pre-test counseling requirements of opt-in testing. The new consent language states that the person being tested, or the legal guardian of that person, should be informed “ …both verbally and in writing, to an extent reasonably comprehensive to general lay understanding, of the nature of the proposed testing and of the risks and alternatives to testing which a reasonable person would consider material to the decision whether or not to undergo testing.” Both of these modifications help eliminate the unnecessary paperwork and extensive counseling requirements of opt-in testing, making it easier for medical providers to offer routine HIV testing. Last, the draft bill adds language mandating a required offer of HIV testing of pregnant women in their first and third trimester, as well as at intake into labor and delivery if the results of previous tests are not available or documented in the patient’s chart—requirements stricter than those in current law. These standardized “offers” further improve chances of eliminating mother to child transmission during or at birth or through breastfeeding (Delaware HIV Consortium Policy Committee and Planning Council, 2010). Identification & Diagnosis of HIV Infection TOP This section provides information to health care providers on the identification and diagnosis of HIV infection, as well as facts and statistics on HIV in the United States. HIV/AIDS Surveillance Program TOP The Delaware HIV/AIDS Surveillance Program of the state Division of Public Health (DPH) provides a wealth of information on persons living with HIV/AIDS in Delaware. Its mission is the ongoing, systematic collection, analysis, and interpretation of data collected for persons living with HIV and AIDS. This section provides information about data collected by the Surveillance Program. Fact sheets and DPH links to disease specific information are located here. The Surveillance Program also generates a monthly surveillance report, which can be founded at the Consortium’s webpage Case Reporting and Partner Notification TOP This section contains procedures for the required reporting of HIV and AIDS cases to the Delaware Division of Public Health. It also provides answers to commonly asked questions and provides contact numbers for more information. HIV reporting provides supplementary data on HIV-infected Delawareans needed to enhance prevention efforts, improve resource allocation, and assist in evaluating public health interventions. Services and Resources TOP A number of services and resources are available throughout the state to assist health care providers needing assistance with HIV prevention, treatment, care, implementation of testing requirements, and assistance in delivering test results. Directory Assistance for Staff and Patients: Delaware Resource Guide 2009-2011:The Delaware Resource Guide 2009-2011 is a convenient directory that lists over 200 agencies and programs throughout Delaware that provide HIV/AIDS services and related resources. Written in both English and Spanish, information can be found on services such as case management, crisis help, HIV counseling and testing, housing programs, medical resources, and supportive services. The Resource Guide is available for both staff and patients—free of charge—from the Delaware HIV Consortium by calling 302-654-5471. An Online Resource Guide is also available on the Consortium’s webpage under the HIV Services dropdown. Pennsylvania/MidAtlantic AIDS Education Training Center (AETC):AIDS Education Training Centers (AETCs) are organizations that can provide a range of assistance to providers and patients alike. The federal Health Resources Services Administration funds eleven AETCs nationally, with every state having access to an AETC. Each AETC subcontracts to Local Performance Sites (LPS), of which there are currently 130. Delaware is part of the Pennsylvania/MidAtlantic AETC whose Center Headquarters is located at the University of Pittsburgh, Graduate School of Public Health in Pittsburgh, Pennsylvania. Information on the Pennsylvania/MidAtlantic AETC can be found here. Offices of the DE LPS are located within the Christiana Care Health Services at the Wilmington Hospital Annex. The DE LPS provides HIV/AIDS related didactic trainings, skill building workshops, clinical training, clinical consultation and technical assistance to healthcare providers statewide—custom designed to match the educational objectives of each provider. The DE LPS staff can travel to any setting to provide trainings tailored to providers’ specific needs; and many trainings provide nursing continuing education credits. Staff of the DE LPS (listed below) are available by phone at 302-255-1404.
In addition to the LPS, there are four national centers and the International Training and Education Center. The four national centers and their services are as follows:
Providers interested in receiving assistance in delivering test results and providing referral information can contact the Delaware HIV Consortium at 302-654-5471. The Consortium can link providers with staff members of either Delaware’s AETC or an AIDS Service Organization (ASO) who can be present to help deliver test results, provide linkages to care, and assist with other needed referrals. Generally, assistance is requested in the case of positive test results. However, unusual circumstances surrounding initial negative test results—when patients feel they still may be positive—have sometimes triggered the need for assistance, as well. AETC and ASO staff members can be on hand to provide assurance, linkages to treatment, and referrals to other services that may be required. CDC Factsheets and Free Publications on HIV: TOP Factsheets on HIV can be found on the Centers for Disease Control’s website on a broad range of topics. Additionally, limited hard copy quantities of promotional materials, publications, and posters can be ordered from that same webpage under “Order Free HIV Publications”. Journal Articles TOP This section provides up to date scholarly articles on issues regarding HIV testing practices in health care settings.
References TOP CDC. (2006). Revised Recommendations for HIV Testing in Adults, Adolescents, and Pregnant Women in Health Care Settings. MMWR Recommendations and Report, 55(14), 1-27. State of Delaware 2010-2014 Comprehensive HIV Prevention Plan and Statewide Coordinated Statement of Need. (2009). Delaware Health and Social Services: Division of Public Health. Page Content Developed by the Delaware HIV Consortium, the Pennsylvania/MidAtlantic AIDS Education and Training Center and the Delaware Division of Public Health (2011) |
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